
Many people ask me how it is that I can maintain such a positive attitude while working as a Hospice social worker. I have had a few revelations over the course of the last four weeks in the Hospice department. One of the first questions asked when someone dies is, "Did they suffer?" The job or philosophy of Hospice is to make the patient as comfortable and pain-free as possible and to provide them with the support system that allows for a dignified method of dying. When I started this position, I was given a caseload of 16 patients. As of today, my caseload is down to 12. So, if you've done the math, 4 of my patients have died. Any person that is not doing this as a career may be really down after experiencing 4 deaths in 4 weeks. But not me. And before you ask, no, I did NOT kill them. Although I had a family equate me to the Grim Reaper, killing patients is not in my job description, now matter how hard they beg.
To be honest, I have had some sad cases, but honestly most can be considered "good deaths". An oxymoron? Not at all. When a patient is able to express his/her wishes for end of life care (i.e., a DNR, advanced directives such as "no feeding tube") as well as when the patient has strong connections with family members who are near and all plans have been made (funeral arrangements, estate planning, etc.), a person can die and it is seen as a good death when they are no longer in pain and battling a terminal disease. I'll elaborate on this subject. My very first patient was a Russian woman who was dying from gallbladder cancer. We were able to contact her daughter who was living out of the country and assist her in making her way to Brooklyn to see her mother. They had not seen each other in at least ten years. The reunion was bittersweet. The daughter was unaware that her mother was even sick. In this case, the patient was able to connect with her daughter on a truly emotional level, they were able to tell each other how they felt about each other and the patient passed away with her daughter holding her hand. This is considered a "good death".
I had a conversation with one of my co-workers today who was relaying her dreams of being a Pediatric Hospice Social Worker. Now, that's where I draw the line. Almost all of my patients are over the age of 70. For some reason, I can justify to myself that it's okay that they die because they have lived a long life, etc. I can't justify a child dying.
My reason for this post is not to bring anyone down, but more to vent about my job. I almost feel morbid every day when I look forward to checking my box at work and seeing one of my patients on the death list. It means that they are no longer in pain. I get a lot of, "wow, your job must be really hard, how can you work with people who are going to die" from friends, family and people who ask me what I do. To be honest, as of now, it's not hard. I know my role as a social worker and my duty is to provide support for the dying patient and their grieving family and friends. It's wonderful to become part of a family who is coming together for the purpose of supporting each other. If I can bring one family closer together, I've done my job.
Now don't get me wrong, as I continue to get to know my patients more, I get attached to them and see the day when I will be heartbroken when they die. I know that in the next few weeks I will have to go through a major loss in my patient load. I have become very close to one of my families. This patient was the first that I have seen from the very beginning of their admittance to Hospice. The patient is grieving for the loss of his former active life and his wife is already grieving for the loss of her husband. I have been in almost daily contact with the wife and relate to her as if she were my own grandmother. I'm sure my connection to her has something to do with losing my grandfather and seeing the loss that my grandmother and my family has experienced. So look forward to the day that I won't seem so unaffected by death and when I truly breakdown at the loss of this patient. From what I have been told from other co-workers, everyone experiences their first heartbreaking death that sticks with them forever.
Have I depressed you enough? Sometimes I'll just need to share my feelings about this morbid stuff. It's hard to understand how I can do this type of job if you are not working in my position. But so far, I absolutely love it. I love the connections I get to make with my patients and their families. I love my co-workers and I love the amazing company I work for.
And last but not least, to clear up one common misconception, Hospice is not a place where people go to die (although it can be a physical place), it is a philosophy of end of life care. For the most part our patients are cared for in their homes and never leave their homes to go to a nursing home, physical hospice or any other place to die.
And now I'd like to leave some room in our presentation for questions....
Anyone? Anyone?